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    SKulas Sep 20 2022 1:47 pm

    Hi Claudia! Welcome to the community! It sounds like your grandson is a happy, lucky little guy!! 😃 I have two with type 2 myself.

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    Claudia Aug 6 2022 2:50 am

    Hi! I am a grandma and caregiver for my grandson who is 4 years old and has SMA Type 1. He was diagnosed before birth and treated with Zolgensma in a clinical trial. I love that he is a happy little guy in spite of all he’s been through. This year has been a doozy! I am so thankful for the SMA community who are so willing to share their experiences. Helping to care for my grandson has been the scariest and yet most rewarding thing I’ve done.

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    Jeni Mar 14 2022 9:37 pm

    Hello to our new community members! Please take a moment to introduce yourself and tell us a little about your journey with SMA. I'm looking forward to getting to know you!

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