Living as an adult with a disability means trusting other people to assist you with daily tasks, some of which are intimate or make you feel vulnerable. How you approach hiring personal care attendants (PCAs) to perform those caregiving tasks is a personal choice.
Some people prefer to use a home health agency, which streamlines the process of getting qualified caregivers. Others prefer to find and hire PCAs privately, which allows them control over every step of the process. This method takes commitment, but some people find it worth the effort.
Here, two individuals living with spinal muscular atrophy (SMA) share their experiences and tips for finding and hiring PCAs on your own.
Finding good PCAs:
Alexa Dectis, 29, lives in Los Angeles, far from her family in Pennsylvania. She currently has 15 caregivers who provide care 16 to 18 hours per day, which allows her to live independently and work as an entertainment lawyer.