English
SpanishTrusted Resources: Community Center
Online groups, photo galleries and blogs
Every Day You Don’t Lose, You Are Winning
Jennifer Summers, 35, is an optimistic, articulate woman. She enjoys crafting, spending time with her close-knit family, and leading small groups and organizing volunteers at her church. And she is excited that she can carry a 32-ounce water bottle. This may not feel like an important feat to some people, but it’s momentous for Jennifer and others diagnosed with spinal muscular atrophy.
“At that time, there were no treatments available,” says Jennifer. “We focused on managing the complications of nerves and muscles dying and getting adaptive equipment.”
BookmarkRelated Content
-
Comparison of Nusinersen and Evrysdi in the Treatment of Spinal Muscular AtrophySpinal Muscular Atrophy (SMA) is a genet...
-
Quality of Life Assessment in Adult Spinal Muscular Atrophy Patients Treated With NusinersenObjective: To retrospectively evaluate q...
-
Once-Daily Risdiplam Beneficial in Patients With Types 2 and 3 SMA: LancetOnce-Daily Risdiplam is beneficial in pa...
-
The Antisense Oligonucleotide Nusinersen for Treatment of Spinal Muscular AtrophySpinal muscular atrophy (SMA) is a rare,...
-
Spinal Muscular Atrophy: Types and GeneticsSpinal Muscular Atrophy (SMA)SMA is a ra...
-
Intrathecal Administration of Nusinersen Using the Ommaya Reservoir in an Adult With 5q-Related Spinal Muscular Atro...Spinal muscular atrophy (SMA) is a hered...
-
Artist With SMA Pens Song ‘SPACES’ About Looking Beyond DisabilityA song written and performed by an artis...
