English
SpanishTrusted Resources: Community Center
Online groups, photo galleries and blogs
Let’s Start From the Beginning
Scarlet was born at 40 weeks and 1 day. She was nearly 10 pounds and took 2 full days to make her entrance. As with almost all SMA kids, I had no idea anything was wrong with my perfect little potato-baby. Her face was smushed and swollen like all other babies.
She had all 10 long fingers and all 10 fat little toes. Her first identifier was her bright red lips, that just about sealed the deal in naming her Scarlet. She was perfect.
BookmarkRelated Content
-
Once-Daily Risdiplam Beneficial in Patients With Types 2 and 3 SMA: LancetOnce-Daily Risdiplam is beneficial in pa...
-
Spinal Muscular Atrophy and TypesWhat is Spinal Muscular Atrophy?Spinal m...
-
Empowered by PossibilityWhen I tell people that Céline has SMA,...
-
Spinal Muscular Atrophy Fact SheetWhat is spinal muscular atrophy?Spinal m...
-
Caregiving for a Young Adult With SMAOpen lines of communication are importan...
-
Safety and Efficacy of Once-Daily Risdiplam in Type 2 and Non-Ambulant Type 3 Spinal Muscular Atrophy (SUNFISH Part ...Background: Risdiplam is an oral small m...
-
Nusinersen for Spinal Muscular Atrophy in the United States: Findings From a Retrospective Claims Database AnalysisSpinal muscular atrophy (SMA) is a rare,...
