English
SpanishTrusted Resources: Community Center
Online groups, photo galleries and blogs
Why I Fought to add SMA to the Newborn Screening Panel
Every year, millions of newborns in the United States are screened for certain severe medical conditions before leaving the hospital. Through a few drops of blood, the tests look for disorders that can cause lifelong health problems and potentially early death if not treated. Spinal muscular atrophy (SMA) is a rare genetic disease and, if diagnosed early, can be treated to stop its progression.
Newborn screening can play a critical role in an early diagnosis and early treatment. Unfortunately, not every state has SMA on their newborn screening panel, and that is what drove one mother to champion for newborns with SMA.
BookmarkRelated Content
-
Miracle for Madison & FriendsMiracle For Madison & Friends is a g...
-
The Gwendolyn Strong Foundation – FacebookJoin an unstoppable community of thought...
-
What It Is Like to Have a Rare Disease. How Clinical Trials Changed My Life?When I was about 1, I started walking wi...
-
Together in SMA – InstagramTogether in SMA, brought to you by Bioge...
-
Together in SMAAt Biogen, we are committed to supportin...
-
Special People Enter Our Lives at Unexpected MomentsWe all experience moments that change ou...
-
Study Highlights Gaps in Knowledge Among Prenatal Genetic CounselorsMany prenatal genetic counselors are unf...
