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Artist With SMA Pens Song ‘SPACES’ About Looking Beyond Disability
A song written and performed by an artist with spinal muscular atrophy (SMA) is the latest project to come out of Genentech’s SMA My Way program, a collaboration that allows those in the SMA community to share knowledge and experiences with others affected by the disease, as well as raise awareness.
“SPACES” was primarily written by singer James Ian, who was diagnosed with SMA type 3 as a teenager. It was released on all major music platforms on Nov. 9. The accompanying music video was directed by Dominick Evans, a disability consultant in Hollywood and an SMA type 3 patient, who had to work on the film remotely from his bed outside Detroit, Michigan. And the cover art of the single was created by Zarek DeMarco Elizondo, who has SMA type 2.
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