DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneSMAvoice.com | ||
If you'd like to unsubscribe and stop receiving these emails click here |
Trusted Resources: News & Meetings
Latest announcements and gatherings
Girl Born With Progressive Disease SMA on the Mend, Has Big Plans for the Future
As four-year-old Celine practiced her half turn, her mother, Amber Joi-Watkins, said she was just an infant, she and her husband Tom Domalski felt something wasn’t quite right with their baby girl.
“When she was about three months old, I noticed that she wasn’t rolling or kicking. We were just doing some of the things that I saw other kids doing at my ‘Mommy and Me’ yoga class,” said Watkins.
At first, Watkins’ pediatrician told her Celine was just fine. But she could tell something was off. A few months later she was told to find a neurologist right away. The diagnosis was spinal muscular atrophy or SMA.
Related Content
-
News & MeetingsNew Treatment Can Help Fresno Infant With Rare Genetic DisorderA Fresno family is holding onto hope aft...
-
People & PlacesJerry R. Mendell, MDJerry R. Mendell, MD, is an Attending Ne...
-
News & MeetingsFDA Lifts Partial Clinical Hold on Novartis’ SMA Drug ProgrammeThe US Food and Drug Administration (FDA...
-
People & PlacesThe Pediatric SMA Clinic – Columbia UniversityThe Pediatric SMA Clinic is committed to...
-
News & MeetingsSTR1VE-EU Trial Shows Efficacy of Onasemnogene Abeparvovec in Spinal Muscular AtrophyOnasemnogene abeparvovec gene replacemen...
-
EducationNeurogenic Arthrogryposis and the Power of PhenotypingIn this article we review the commonest ...
-
Videos & VisualsLearning Center Progress in Spinal Muscular Atrophy Managementhttps://sma.elsevierresource.com/sites/s...
send a message
Reset password
password changed successfully!
please log in with your email address and new password.
your activation key expired
this confirmation key has expired. please try to log in again or resend confirmation email.
confirmation email sent
a confirmation email has been sent to your inbox. click the link in the email to activate your account.
can't find the email? be sure to check your spam folder.
password reset email sent
an email has been sent to you with a link to reset your password.
can't find the email? be sure to check your spam folder.
If you are a doctor or other qualified health care professional, you should not offer any medical advice or treatment on our Sites, nor should you allow the content of our Sites to substitute for your own medical judgment. Please thoroughly review the information provided on our Sites before deciding whether any of the products, services, or treatments therein are right for you or others.
your account is now activated!
Log in
This feature is only available to members.
you haven't confirmed your email address yet. resend confirmation email