Mothers Want to Improve Children’s Quality of Life

Mothers of children and adolescents with spinal muscular atrophy (SMA) want to find ways to improve the quality of life of their children and families, a questionnaire-based study reports. “The results of this research … could help specialists in providing psychological support for families of SMA children and/or adolescents,” the researchers wrote. The study, “Findings regarding emotion regulation strategies and quality of life’s domains in families having children with spinal muscular atrophy,” was published in the Journal of Medicine and Life.

SMA is characterized by progressive muscle atrophy (shrinkage) and weakness that leads to severe physical disabilities in affected individuals and a significant burden on their families, which can affect the quality of life. However, few studies have investigated the emotional coping strategies used by families with children or adolescents with SMA.

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