Girl Born With Progressive Disease SMA on the Mend, Has Big Plans for the Future

As four-year-old Celine practiced her half turn, her mother, Amber Joi-Watkins, said she was just an infant, she and her husband Tom Domalski felt something wasn’t quite right with their baby girl.

“When she was about three months old, I noticed that she wasn’t rolling or kicking. We were just doing some of the things that I saw other kids doing at my ‘Mommy and Me’ yoga class,” said Watkins.

At first, Watkins’ pediatrician told her Celine was just fine. But she could tell something was off. A few months later she was told to find a neurologist right away. The diagnosis was spinal muscular atrophy or SMA.