Trusted Resources: People and Places
Healthcare providers, researchers, and advocates
Darin K. Brannan, MD, MPH, FAAP
PediatricianBethany Children's Health Center
Donald W. Reynolds Complex
6800 NW 39th Expy
Bethany, Oklahoma, United States
Eileen Broomall, MD
Pediatric NeurologistDivision of Neurology
Cincinnati Children’s Hospital
3333 Burnet Avenue
Cincinnati, Ohio, United States
Wendy Kay Chung, MD
GeneticistDivision of Clinical Genetics, Department of Pediatrics
CUIMC/NewYork-Presbyterian Morgan Stanley Children's Hospital
3959 Broadway
Floor 7, Suite 718
New York, New York, United States
Emma Ciafaloni, MD
NeurologistDepartment of Neurology
University of Rochester Medical Center
601 Elmwood Ave, Floor 1
Strong Ambulatory Care Facility
Rochester, New York, United States
Thomas Crawford, MD
NeurologistMuscular Dystrophy Association Clinic
Johns Hopkins Pediatrics
200 N. Wolfe Street
Rubenstein Child Health Building, Suite 2158
Baltimore, Maryland, United States
Basil Darras, MD
NeurologistNeuromuscular Center and Spinal Muscular Atrophy Program
Department of Neurology
Boston Children's Hospital
300 Longwood Avenue, Fegan, 11th Floor
Boston, Massachusetts, United States
Claudia A. Chiriboga, MD
NeurologistCUIMC/Harkness Pavilion
180 Fort Washington Avenue
Suite 552
New York, New York, United States
Anne M. Connolly, MD
NeurologistDivision of Neurology
Nationwide Children’s Hospital
700 Childrens Drive
Columbus, Ohio, United States
Richard S. Finkel, MD
NeurologistCenter for Experimental Neurotherapeutics
St. Jude Children's Research Hospital
262 Danny Thomas Place
Memphis, Tennessee, United States
Matthew Harms, MD
NeurologistCUIMC/Neurological Institute of New York
710 West 168th Street
New York, New York, United States
Jerry R. Mendell, MD
NeurologistPediatrics & Neurology
Nationwide Children’s Hospital
700 Children's Drive
Columbus, Ohio, United States
George Z. Mentis, PhD
NeurologistPathology and Cell Biology (in Neurology)
Columbia University Irving Medical Center
630 West 168th Street
New York, New York, United States
Kathie Bishop, PhD
Community LeaderSMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States
Karen S. Chen, PhD
Community LeaderSMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States
Kristina DeFazio
Community LeaderFighting for Kaiden Foundation, Inc.
PO BOX 386
Linthicum, Maryland, United States
Loren A. Eng, MA, MBA
Community LeaderSMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States
Kelly Howell, PhD
Community LeaderSMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States
Claire Altman Heine Foundation
1112 Montana Avenue, #372Santa Monica, California, United States
email phone website
Muscular Dystrophy Association
161 N. Clark, Suite 3550Chicago, Illinois, United States
email phone website
Arkansas Children’s Hospital – Spinal Muscular Atrophy Clinic
1 Children's WayLittle Rock, Arkansas, United States
phone website
Boston Children’s Hospital – Spinal Muscular Atrophy Program
300 Longwood Ave, Fegan 11Boston, Massachusetts, United States
email phone website
Children’s Hospital of The King’s Daughters – Spinal Muscular Atrophy Center
850 Southampton AveNorfolk, Virginia, United States
phone website
Children’s Medical Center of Dallas, University of Texas
1935 Medical District DriveDallas, Texas, United States
phone website
Children’s National Medical Center – Neuromuscular Medicine Program
111 Michigan Avenue NWWashington, DC, United States
email phone website