Trusted Resources: People and Places

Healthcare providers, researchers, and advocates

19 resources available:

Darin K. Brannan, MD, MPH, FAAP

Pediatrician
Bethany Children's Health Center
Donald W. Reynolds Complex
6800 NW 39th Expy
Bethany, Oklahoma, United States

Eileen Broomall, MD

Pediatric Neurologist
Division of Neurology
Cincinnati Children’s Hospital
3333 Burnet Avenue
Cincinnati, Ohio, United States

Wendy Kay Chung, MD

Geneticist
Division of Clinical Genetics, Department of Pediatrics
CUIMC/NewYork-Presbyterian Morgan Stanley Children's Hospital
3959 Broadway
Floor 7, Suite 718
New York, New York, United States

Emma Ciafaloni, MD

Neurologist
Department of Neurology
University of Rochester Medical Center
601 Elmwood Ave, Floor 1
Strong Ambulatory Care Facility
Rochester, New York, United States

Thomas Crawford, MD

Neurologist
Muscular Dystrophy Association Clinic
Johns Hopkins Pediatrics
200 N. Wolfe Street
Rubenstein Child Health Building, Suite 2158
Baltimore, Maryland, United States

Basil Darras, MD

Neurologist
Neuromuscular Center and Spinal Muscular Atrophy Program
Department of Neurology
Boston Children's Hospital
300 Longwood Avenue, Fegan, 11th Floor
Boston, Massachusetts, United States
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10 resources available:

Claudia A. Chiriboga, MD

Neurologist
CUIMC/Harkness Pavilion
180 Fort Washington Avenue
Suite 552
New York, New York, United States

Anne M. Connolly, MD

Neurologist
Division of Neurology
Nationwide Children’s Hospital
700 Childrens Drive
Columbus, Ohio, United States

Richard S. Finkel, MD

Neurologist
Center for Experimental Neurotherapeutics
St. Jude Children's Research Hospital
262 Danny Thomas Place
Memphis, Tennessee, United States

Matthew Harms, MD

Neurologist
CUIMC/Neurological Institute of New York
710 West 168th Street
New York, New York, United States

Jerry R. Mendell, MD

Neurologist
Pediatrics & Neurology
Nationwide Children’s Hospital
700 Children's Drive
Columbus, Ohio, United States

George Z. Mentis, PhD

Neurologist
Pathology and Cell Biology (in Neurology)
Columbia University Irving Medical Center
630 West 168th Street
New York, New York, United States
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8 resources available:

Kathie Bishop, PhD

Community Leader
SMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States

Karen S. Chen, PhD

Community Leader
SMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States

Kristina DeFazio

Community Leader
Fighting for Kaiden Foundation, Inc.
PO BOX 386
Linthicum, Maryland, United States

Loren A. Eng, MA, MBA

Community Leader
SMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States

Kelly Howell, PhD

Community Leader
SMA Foundation
970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States

Anne Meguiar

Community Leader
SMA Angels Charity
Richmond Hill, Georgia, United States
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10 resources available:

Claire Altman Heine Foundation

1112 Montana Avenue, #372
Santa Monica, California, United States
email   phone   website  

Miracle for Madison & Friends

6166 Enke Ct.
Dublin, Ohio, United States
email   phone   website  

Muscular Dystrophy Association

161 N. Clark, Suite 3550
Chicago, Illinois, United States
email   phone   website  

SMA Angels Charity

P.O. Box 308
Richmond Hill, Georgia, United States
email   phone   website  

SMA Foundation

970 W Broadway STE E
PMB 140
Jackson, Wyoming, United States
email   phone   website  

SMA My Way

One Antibody Way
Oceanside, California, United States
website  
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25 resources available:

Advocate Children’s Hospital

1675 Dempster St
Park Ridge, Illinois, United States
phone   website  

Arkansas Children’s Hospital – Spinal Muscular Atrophy Clinic

1 Children's Way
Little Rock, Arkansas, United States
phone   website  

Boston Children’s Hospital – Spinal Muscular Atrophy Program

300 Longwood Ave, Fegan 11
Boston, Massachusetts, United States
email   phone   website  

Children’s Medical Center of Dallas, University of Texas

1935 Medical District Drive
Dallas, Texas, United States
phone   website  

Children’s National Medical Center – Neuromuscular Medicine Program

111 Michigan Avenue NW
Washington, DC, United States
email   phone   website  
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