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Boston Children’s Hospital – Spinal Muscular Atrophy Program300 Longwood Ave, Fegan 11
Boston, Massachusetts, United States
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The Spinal Muscular Atrophy Program at Boston Children’s Hospital brings together a team of specialists who are experienced in caring for children with this rare and complex condition. Directed by Basil Darras, MD, our program brings together specialists from a variety of fields including:
• Physical Therapy
Our clinical teams are experienced in caring for children with SMA. For example, children with SMA can have complications when having anesthesia because of weakness in the respiratory muscles. Our team of anesthesiologists understands SMA and has the expertise to safely provide anesthesia for our SMA patients.
We hold a dedicated SMA clinic once or twice a month. The clinic allows you to meet with all of your child’s SMA-related providers during a single visit. It also gives us the opportunity to evaluate your child’s health as a whole and to work with your family to make the best treatment decisions.
Equipment Donations at SMA ClinicThe Pediatric SMA Clinical Research Cent...
Why Some Drugs Cost $2.1 Million per Dose and how one Company Plans to Change ThisWith a cost of $2.1 million for a one-do...
Patient and Caregiver Treatment Preferences in Type 2 and Non-Ambulatory Type 3 Spinal Muscular Atrophy: A Discrete ...Background: Spinal muscular atrophy (SMA...
Anaesthetic Considerations in Posterior Instrumentation of Scoliosis Due to Spinal Muscular Atrophy: Case Series of ...Spinal muscular atrophy (SMA) is a rare ...
Spinal Muscular Atrophy 2020: SMA Medications for Treatment Updateshttps://www.youtube.com/watch?v=dnSXnvrO...
Neurofilament Levels in CSF and Serum in an Adult SMA Cohort Treated With NusinersenObjective: To retrospectively evaluate t...
Spine Surgery Effective in SMA Type 1 Children, But Not Without RisksSurgery to correct kyphoscoliosis — a ...