The Spinal Muscular Atrophy Program at Boston Children’s Hospital brings together a team of specialists who are experienced in caring for children with this rare and complex condition. Directed by Basil Darras, MD, our program brings together specialists from a variety of fields including:

• Neurology

• Genetics

• Orthopedics

• Physical Therapy

• Respiratory/Pulmonary

• Nutrition

• Gastroenterology

• Anesthesiology

• Surgery

Our clinical teams are experienced in caring for children with SMA. For example, children with SMA can have complications when having anesthesia because of weakness in the respiratory muscles. Our team of anesthesiologists understands SMA and has the expertise to safely provide anesthesia for our SMA patients.

We hold a dedicated SMA clinic once or twice a month. The clinic allows you to meet with all of your child’s SMA-related providers during a single visit. It also gives us the opportunity to evaluate your child’s health as a whole and to work with your family to make the best treatment decisions.