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Healthcare providers, researchers, and advocates
Mass General Spinal Muscular Atrophy (SMA) Multidisciplinary ClinicDepartment of Neurology
Charles River Plaza
165 Cambridge St
8th Floor, Neuromuscular Suite
Boston, Massachusetts, United States
The Mass General Spinal Muscular Atrophy (SMA) Multidisciplinary Clinic provides the latest treatments and research opportunities for people with Spinal Muscular Atrophy.
Find information, guides and more resources on each of the following topics to aid you in planning a SMA management strategy:
• Exercise & Mobility
• Special Considerations in SMA Infants
• Dental Care
The first medication for SMA, Spinraza (Nusinersen), was approved by the FDA in December 2016. We’re here to help answer any questions you may have about this new treatment for SMA. Other than Spinraza, medical care is primarily supportive, focused on respiratory support, nutritional support, and musculoskeletal management.
Early Diagnosis of Spinal Muscular AtrophyUntreated spinal muscular atrophy (SMA) ...
An Interview With Muscular Dystrophy Association President Donald S. WoodLarry Luxner, senior correspondent for R...
SMA Type 1 – Looking After Your Child Who Has Had a Recent DiagnosisThe aim of everyone involved in your chi...
Implications of Circulating Neurofilaments for Spinal Muscular Atrophy Treatment Early In Life: A Case SeriesThis longitudinal cohort study aimed to ...
Neurofilament Levels in CSF and Serum in an Adult SMA Cohort Treated With NusinersenObjective: To retrospectively evaluate t...
The Antisense Oligonucleotide Nusinersen for Treatment of Spinal Muscular AtrophySpinal muscular atrophy (SMA) is a rare,...
Every Day You Don’t Lose, You Are WinningJennifer Summers, 35, is an optimistic, ...