Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Mass General Spinal Muscular Atrophy (SMA) Multidisciplinary Clinic
Department of NeurologyCharles River Plaza
165 Cambridge St
8th Floor, Neuromuscular Suite
Boston, Massachusetts, United States
Phone Web
The Mass General Spinal Muscular Atrophy (SMA) Multidisciplinary Clinic provides the latest treatments and research opportunities for people with Spinal Muscular Atrophy.
Management Strategies:
Find information, guides and more resources on each of the following topics to aid you in planning a SMA management strategy:
• Respiratory
• Nutrition
• Exercise & Mobility
• Orthopedic
• Special Considerations in SMA Infants
• Dental Care
The first medication for SMA, Spinraza (Nusinersen), was approved by the FDA in December 2016. We’re here to help answer any questions you may have about this new treatment for SMA. Other than Spinraza, medical care is primarily supportive, focused on respiratory support, nutritional support, and musculoskeletal management.
Related Content
-
Spinal Muscular Atrophy 2020: SMA Medications for Treatment Updateshttps://www.youtube.com/watch?v=dnSXnvrO...
-
SMA Foundation – TwitterSMA Foundation stands with the mission t...
-
Missense Mutation in Gene Caused Psychomotor Developmental Delay and Muscle Weakness: A Case ReportThe gene encodes a part of the dynamic p...
-
Spinal Muscular Atrophy Fact SheetWhat is spinal muscular atrophy?Spinal m...
-
Why Texas Added Spinal Muscular Atrophy to Required Screenings for NewbornsKERA’s Sam Baker talks with Dr. Angela...
-
Assessing Cognitive Function in Neuromuscular Diseases: A Pilot Study in a Sample of Children and AdolescentsCentral nervous system (CNS) involvement...
-
Assessment of Cerebral Spinal Fluid Biomarkers and microRNA-Mediated Disease Mechanisms in Spinal Muscular Atrophy P...Cerebral spinal fluid (CSF) is a promisi...