Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Nationwide Children’s Spinal Muscular Atrophy Clinic700 Childrens Drive
Columbus, Ohio, United States
The SMA Clinic is a joint program between Nationwide Children’s Hospital and The Ohio State University Wexner Medical Center, providing comprehensive, multidisciplinary care for patients from across the United States. Specialized services include the following disciplines:
• Pulmonary Medicine
• Rehabilitation (Inpatient)
• Respiratory Therapy
• Occupational Therapy
• Physical Therapy
Spinal Muscular Atrophy Clinic Advocacy:
• We assist patients and families cope with the chronic effects of SMA. We care for infants, children and adults.
• We assist families identify services available to patients with SMA.
Clinical Research Program:
The Spinal Muscular Atrophy Clinic, along with the Center for Gene Therapy in The Research Institute at Nationwide Children’s Hospital and the OSU Division of Neuromuscular Medicine, is actively involved in clinical trials for children and adults with SMA. Our Clinical Research Unit is the only center in the world that has carried out clinical trials in all three major forms of the disease. Several trials are ongoing and additional trials are in the planning stages. To that end, we participate in the Families of SMA-sponsored “Project Cure SMA” an international consortium of medical centers performing clinical trials in SMA.
Karen S. Chen, PhDKaren Chen is the Chief Executive Office...
Spinal Muscular Atrophy Patient Assistance FundThe PAN Foundation is an independent, na...
Ryan Hawn Memorial ScholarshipThe Ryan Hawn Memorial Scholarship is a ...
Innovation in Child Neurology: Acadia’s Head of Rare Disease Shares What It Takes to Make a BreakthroughKathie Bishop, Ph.D., knows exactly what...
Jack Scura FundJack Scura Fund is designed to recognize...
Andrew “Sparky” Seever ScholarshipThe Andrew "Sparky" Seever Scholarship h...
PATH-WAY Providing Access to Happiness ScholarshipPATH-WAY is a not-for-profit organizatio...