rarerelated tag: SMA Type 2 (Intermediate SMA or Dubowitz Disease)

Let’s Start From the Beginning

Scarlet was born at 40 weeks and 1 day. She was nearly 10 pounds and took 2 full days to make her entrance. As with almost all SMA kids, I had no idea anything was wrong with my perfect little potato-baby. Her face was smushed and swollen like all other babies. 

She had all 10 long fingers and all 10 fat little toes. Her first identifier was her bright red lips, that just about sealed the deal in naming her Scarlet. She was perfect.