source: Spinal Muscular Atrophy UK

year: 2022

Your child should receive care from members of a multidisciplinary healthcare team, who all have an important role to play. Over time, you may have contact with specialists in:

·         Neuromuscular conditions

·         Hospital or community pediatrics

·         Physiotherapy

·         Occupational therapy

·         Orthopedics

·         Dietetics

The aim of the healthcare team is for your child to stay healthy and enjoy good quality of life. Different members of the team will meet you regularly both to measure any change in your child’s health and to offer advice and interventions at the right time. As well as looking at your child’s medical needs, when they talk with you about options for care of your child, they will also want to be aware of your family’s social, cultural and spiritual needs.

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