DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneSMAvoice.com | ||
If you'd like to unsubscribe and stop receiving these emails click here |
Trusted Resources: News & Meetings
Latest announcements and gatherings
The Story You Need to Tell Writing Workshop
April Johnson Stearns, Founder, and Editor-in-Chief, of WILDFIRE Magazine is leading a workshop for anyone interested in using their voice to advocate for themselves and others in a meaningful and effective way. This writing workshop is dedicated to the would-be movers and shakers advocating for themselves and others.
Maybe you have an idea to design a product, make a movie, work to change some legislation, or organize a fundraiser — advocacy comes in as many shapes and sizes as there are people in our community – and all are needed. (If you’re already doing this work, you’re welcome here, too!)
The first step is to find your voice to tell your own story — and that’s what this workshop will help you do, as well as begin the work of identifying the advocacy that comes naturally to you.
About WILDFIRE Magazine:
April launched WILDFIRE Magazine as a way to create community through personal storytelling as it pertains to young women diagnosed with breast cancer. She wanted to help others heal through the reading and writing of stories. WILDFIRE is a gorgeous ad-free print and digital magazine. Each issue tells the stories of 30+ women diagnosed under 45 years old from all over the world.


Related Content
-
News & MeetingsVitamin K Deficiency Caused Blood Clotting Problem in SMA TeenAn adolescent male with spinal muscular ...
-
People & PlacesThomas Crawford, MDDr. Tom Crawford has been a member of th...
-
EducationInfantile Hypotonia: A Case of Spinal Muscular Atrophy With Respiratory Distress Type 1 Presenting As Infant Botulis...Spinal muscular atrophy with respiratory...
-
EducationDetection of Spinal Muscular Atrophy Patients Using Dried Saliva SpotsSpinal muscular atrophy (SMA) is a lower...
-
News & MeetingsSTR1VE-EU Trial Shows Efficacy of Onasemnogene Abeparvovec in Spinal Muscular AtrophyOnasemnogene abeparvovec gene replacemen...
-
EducationOrganotypic Spinal Cord Cultures: An in Vitro 3D Model to Preliminary Screen Treatments for Spinal Muscular AtrophySpinal muscular atrophy (SMA) is a sever...
-
EducationSMA Type 2 – Looking After Your Child Who Has Had a Recent DiagnosisOne of the first questions many families...
send a message
Reset password
password changed successfully!

please log in with your email address and new password.
your activation key expired
this confirmation key has expired. please try to log in again or resend confirmation email.
confirmation email sent

a confirmation email has been sent to your inbox. click the link in the email to activate your account.
can't find the email? be sure to check your spam folder.
password reset email sent

an email has been sent to you with a link to reset your password.
can't find the email? be sure to check your spam folder.

If you are a doctor or other qualified health care professional, you should not offer any medical advice or treatment on our Sites, nor should you allow the content of our Sites to substitute for your own medical judgment. Please thoroughly review the information provided on our Sites before deciding whether any of the products, services, or treatments therein are right for you or others.
your account is now activated!

Log in
This feature is only available to members.
you haven't confirmed your email address yet. resend confirmation email