Trusted Resources: Education

Scientific literature and patient education texts

A Teacher’s Guide to Neuromuscular Disease

key information

source: Muscular Dystrophy Association Inc.

year: 2019

summary/abstract:

We have created this booklet to help provide information and support to teachers of students with a neuromuscular disease. It is our goal that this booklet will help you better understand the challenges faced by children and adolescents affected by neuromuscular conditions, including muscular dystrophy, spinal muscular atrophy and Charcot-Marie-Tooth disease. This guide suggests general strategies to enhance your student’s school experience both academically and socially, and it addresses school issues that may arise throughout K-12 education.

We understand that learning about the various challenges associated with neuromuscular disease can be overwhelming. The good news is that these students also come with their own unique set of deep strengths, and your role in encouraging, supporting and motivating them draws on many of the skills you’re already using with your diverse class of students.

 

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